• For Ava

    Vera Twomey Editors Varis SQU 9999903513421 Article 0,00 €
    See other books by the same author
    What would you do to save your child? When Vera Twomey's daughter Ava was diagnosed with Dravet Syndrome, a rare form of epilepsy that causes multiple seizures a day, the family's life was thrown into chaos. Where they hoped to find treatment and support in the medical system, they found only frust...
    Weight: 333 gr
    Available
    4,60 €
    • How to reserve books
      Books can be reserved online for later collection and payment at Hibernian by adding to cart and marking it as "store pick up". If books have not been paid for online then they will be kept aside for a maximum of three (3) work days only. If you want them held longer, you can pay for them online.
  • Details

    • Book binding : Paperback
    • Preservation state : 3. Good
    • Publication Date : 09/09/2026
    • Year of edition : 0
    • Authors : Vera Twomey
    • Number of pages : 285
    What would you do to save your child?
    When Vera Twomey's daughter Ava was diagnosed with Dravet Syndrome, a rare form of epilepsy that causes multiple seizures a day, the family's life was thrown into chaos. Where they hoped to find treatment and support in the medical system, they found only frustration. The only medication that would have any effect on Ava's condition is a form of medicinal cannabis that was unavailable in Ireland.
    Thus began the family's fight to alleviate their daughter's suffering and give her a chance at life. Faced with an intransigent system and political establishment, Vera's campaign eventually culminated in her decision to walk from Cork to Leinster House in Dublin in protest to ask health minister Simon Harris for help in person. For Avatells the story of the campaign for Ava's medication and the family's move to the Netherlands in order to legally access the medication that would save her life. It also pays tribute to the people who helped Vera achieve her goal. Above all, this is a moving story about the lengths a parent will go to for their child's health and happiness.

This website stores data as cookies to enable the necessary functionality of the site, including analytics and personalization. You can change your settings at any time or accept the default settings.

cookies policy

Essentials

Necessary cookies help make a web page usable by activating basic functions such as page navigation and access to secure areas of the web page. The website cannot function properly without these cookies.


Personalization

Personalization cookies allow the website to remember information that changes the way the page behaves or the way it looks, such as your preferred language or the region in which you are located.


Analysis

Statistical cookies help web page owners understand how visitors interact with web pages by collecting and providing information anonymously.


Marketing

Marketing cookies are used to track visitors on web pages. The intention is to show ads relevant and attractive to the individual user, and therefore more valuable to publishers and third-party advertisers.